Mark Zuckerberg ALS Ice Bucket Challenge video

My father went un-diagnosed for years and is in what I personally think is his 3rd or 4th year of having ALS. He has lost the movement in most of his right side of his body and his speech is almost to the point where we cannot understand what he says within hours after he wakes up due to fatigue of the muscles he uses to speak.
Raising awareness is a key essential point not only for this year, but years to come. What may seem ridiculous to some now, can help in the future. ALS takes the lives of so many people and many of them cannot get the help they need to live comfortably while their body eventually succumbs to this terrible disease. It is most important to me to raise the awareness at this point in my life knowing that a disease of any sort can take the life of someone you love at any moment.

We must, as a species take measures towards continually raising awareness for diseases and work towards defeating these diseases before they defeat us. We must combat diseases such as ALS, HIV, Cancer, Parkinson disease, and many more, with raising awareness and money to look for cures towards them, but we must also fight the governing bodies that be and get them to see reason that our families are not for profit. Our families and their diseases must no longer be put on the front line to sustain drug companies and those surrounding them and the politics they buy off. We must raise money, and raise our voices to those who would rather hear the cash register ring up another billion dollars than to find the cure to what ails us. We are being treated like the lab animals certain groups have fought so many years to save.
When is it our turn to use our voices to speak up and say enough is enough? When is it time for you to speak up?
It took me until now, this moment in my life, when I am nearing the end of my time with my dad, my hero, to realize it is time for me to speak up.
Let us speak up in unison, write your drug companies, and tell them it is time to find the cure to these diseases and stop just treating the symptoms to them so they can make a buck.
Do your donations, and raise your awareness. But also speak up.
It is time we show them that the pen is truly mightier than the sword and fight our asses off before we all fall victim to something we cannot turn back from.
We do not get back the time with our families and friends that fall to life threatening diseases. But our voices may one day be strong enough in unison to give time to another persons family or friends nearest and dearest to them.
Write your Drug companies, and your governors and legislators, write them all and say enough is enough.

Find the cure and cure it not just the symptoms and treat it.